Connor Lynes was just 14 years old when he suffered a near fatal blood clot on his brain, after playing Rugby League in Hull.
As a result, he suffered 2 strokes and underwent two operations to try and remove the clot.
The procedure was unsuccessful, and he has been left with life changing medical needs and still has the clot on his basiiler artery in his brain, leaving his prognosis uncertain.
Connor has been left with this very rare condition but despite daily struggles and the high risk of further strokes, he has set up his own foundation to help raise awareness of brain injury and stroke in children, whilst raising funds for those who supported him.
Incredibly, he has raised around £5000.00 for 4 main charities, including The RFL Benevolent Fund, Life for a Kid, Paul for brain recovery and Leeds PICU, by doing various events in and around Hull.
Connor also set up an event via Facebook and Twitter to encourage people to change their profile picture or take a selfie with his logo and use the hash tags #teamconnor #childhoodstroke #bebrainsmart #geteducated.
Supported by all Super League teams, Melbourne Storm, as well as amateur teams from around the region, the event went viral and raised awareness of brain injury and strokes. He has a few events set up including a charity touch rugby match and a beanie hat for brain injury project, which was inspired by our friends down under.
Connor was recently asked to become the youngest patron for Life for a Kid at 14 and is now fully supported by this amazing charity. Connor wants to make everyone aware of brain injury and strokes, and knows how lucky he has been, and says “if his message helps one person recognise the signs and symptoms or encourages them never to give up than his battle will be worth it”.